Day 6 was a lot like Day 5 - except Day 6 - - well it was a lot like Day 5, I'm sure there were some differences, Let me think. I talked to Patty a couple of times, I did that on Day 5, I took a shower on Day 5 and didn't take a full one on Day 6. My nutriphils (spelling?) were still about Zero and now they need to start raising. Everything seems to be doing what they expect they should do for the recovery stage. One thing that was different between the two days, the Dietitions were plotting on how to get more food in me, you see with my nausea, I do eat, but I have to schedule it when I'm getting nausea medicine in me so I greatly reduce the opportunity for the nausea to win and for me to "lose my lunch" or dinner, or breakfast whatever the case may be. I thought I had it going pretty well but yesterday (Day 5) I got off schedule and by the time I realized it, I really only had time for two meals, and that was from an able to eat them point of view not a nausea point of veiw. When you sit in a room all day - except for taking a trip or two around the ward, you really don't expend much energy, so my typical day consists of about the following:
Overnight the nurses and aids come in two - 3 times from around midnight until 6:30. So inbetween that, I try to sleep and usually wake up about 7:30-8:00, it's hard to get use to Utah time when it's still dark almost at 7:30. Then around 8:00 the nurse comes in and we talk and they get the vitals and some nausea medicine so I have about 1-1/2 window to get breakfast going, I usually get two bowls of repared cearel, milk, banana, orange slices or similar to try to make about 500-600 cal. Then I talke my morning nap, or go for a walk, around 1:00 nurse and aid come back in and we do it again and again I have 1-1/2 hours to eat, and sometimes I'm still full from breakfast. Then in the afternoon is when hygiene items take over and I try to walk again. Then about 5:30 the whole eating thing starts again, because if I don't call them by 6:30, the food people call me and ask if I am going to order anything that night. The main kitchen closes at 8:00, so I try to make my order and wait for it and for some more nausea meds to get me through. I try to eat a little more at lunch and/or dinner to make sure I get over the 1500 cal threshold that I was told about.
Well now they have a new longer lasting nausea medicine they want to try, Emend ( Fosaprep ) I got the name of it from a good nurse, to see if it can be bridge between everything rather than some of the peaks and valleys I get now, althought I really don't feel like I'm having too many valleys (knock on wood). I had a bad day when the schedule didn't work very well (or I didn't work the schedule very well) so they are getting very proactive on helping me to help myself. We'll have to see how it will work for me to meet the goals to get me out of here and on my way to the half way house before being release to go back south.
Cara and Bruce are scheduled to come see me this weekend. I'm looking forward to that and I think I have a couple of small errands and things they can help me with. Then next weekend Matt is suppose to come up to hopefully help be transisition to the half way house. I send blessings to all of you, we are all so grateful for all the thoughts and prayers from all of you on our little issues. Things will work out eventually, but unfortunately for us, we work on God's time, no the otherway around. Until next time.
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