Tuesday, July 22, 2014
Just another steroid induced Tuesday
The last post early in the month talked more about family and other things going on because I didn't have too much going on personally, so I told all about our trip to Parowan to seal the garage floor and get rid of a bunch of weeds. It really was a very good weekend and I do still really thank my boys for all the work in the garage and Ryan and Amanda for transporting and arranging for the beef and of course Bruce and Cara for allowing me to steal their tractor mower.
Now, I gave blood on July 11th like I was suppose to and then Patty and I made a semi-quick one day trip to St. George, then Cedar City, then Parowan before coming back to Vegas in a 7:00 to 7:00ish trip in one day, it was long, but it was a good trip. The results with the blood test were quite good again, I had contacted Dr. Te earlier in the week to see if he would look at my results as soon as he could so that if I needed a blood transfusion we could make the arrangements earlier and be able to plan for it since I was taking Patty with me and figuring out the logistics of when my appoint would be. But all of that was for nothing because Dr. Te called me and said that the blood tests came out OK and I didn't have to have the transfusion. My red cells were above the need and the other factors looked good too. My white blood cells are very low, but we have to live with them for a while. Anyway, got to Dr. Te's office Friday morning and he went over the latest blood tests with me, my IGG continues to drop it went from a mid range normal of 1150+/- down to around 700 which is low range normal, he was very pleased. The M-spike number dropped from 0.7 down to 0.4, which is the more important number that gets looked at for the transplant numbers.
I also had contact with Cindy Nordling, my patient coordinator at LDS Hospital in Salt Lake where my first and my next autologic transplat will happen when everyone is happy with my numbers sometime in the next few months. Which will in itself will create another whole set of logistic problems for us.
We are getting ready for a couple of other items I officially leave the City next Thursday July 31st but unofficially it will happen before that because we are leaving next Tuesday for Salt Lake so I can get the tests and appointments done at LDS Hospital in preparation for my next autologic transplant, then stay over the weekend for the wedding of my nephew Christopher Dickman to a lovely but mentally questionable (she picked Chris) you lady Liz Robbins that comes from the Sugar House area of Salt Lake. We are really looking forward to the trip for several reasons, we are super happy for Chris and we'll also be able to see Lance and Susy and their kids that live in Orlando, we have seen Susy and the kids each year, but I haven't seen Lance for several years which I am looking forward to. It will be a long and full day next Saturday because it begins before 8:00 in the morning and the reception gets over after 8:00 at night - Long Day. We also got some good news, Patty invited and Donna Arnold our good friend decided to drive up and stay with us to help Patty and I with the trip and they can spend the Wednesday, Thursday and Friday time having some fun while I am waiting between appointments at the hospital and I will have someone to drive us back to the room after my latest bone marrow biopsy that will most likely happen last, sometime on Friday. Because they won't let me (nor should I) drive after getting it done.
I will write more when we come back until then I hope everyone has a good week and a great weekend, we will write more soon.
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