As you all know I came home Wednesday late afternoon and then didn't have anything going on all day on Thursday. Friday came and I had to go in for labs to see if the effects of the Cytoxan were starting, not sure what the lab results said, but I didn't have to get any transfusions, so for now that's a good thing.
Saturday came and the boys came up to see us Josh and Matt are staying until Tuesday morning I think and I'm going to make sure Patty gets out with them to have some fun so my bubble boy status doesn't hinder their ability to have a pretty good time. They beat the storm coming up as they stayed in Parowan Friday night and got up early to make it up here. As far as my bubble boy status, I have to mask up when I go outside and am around groups of people that I don't know their health status. In the Car I usually take the mask off and once I get to the BMT clinic I can also take it off.
So, Sunday begins the twice a day shots, it's day 6 since getting the Cytoxan and in order to take advantage of the spring board effect that the doctors want, they are giving me Neupogen twice a day and another growth drug every night with the second dose of Neupogen each day. I also get to start a pretty heavy dose of anti-biotics to know down anything that might sneak past the mask and Patty to threaten me. Everyone is taking great care of me and I hope that my nausea can stay down so I don't waste any medicine that needs to help me.
They tell me that eventually I will need transfusions because my blood numbers will be so low, don't know when that will come, but will deal with when the time comes. I believe the care I'm receiving at LDS hospital is as good as it would be anywhere and better than most places, I appreciate they do their best to treat me as a person and not just as a name and birthdate as some places might.
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