Thursday, July 15, 2010

7/15/2010 We're in Salt Lake

Stayed in Parowan last night, got up this morning and drove up to Salt Lake to meet with LDS Hospital people at 11:00 this morning which lasted until about 2:30.

We met with various staff at LDS and they were all very nice, we met with Dr. Petersen, the director of the BMT - Bone Marrow Transplant center located on the 8th floor of the hospital. We got some news that changes things a little, my "m" spike, or the proteins that identify me as having multiple myeloma has gone up again a little, so chances are I will be changing medication to something called Revlimid which is taken orally with the Dex that I already take. It has shown to be stronger in dealing with mm protein spikes. I'll find out on Tuesday exactly how it will work and I'll post to let everyone know. It looks like the treatments will last longer than originally we thought, so we probably won't end up in Salt Lake for the transplant until at least into October.

The hospital will be sending me a letter next week, so after talking to Dr. Te on Tuesday and getting the letter from the hospital after that, we'll know more what we're talking about. I can't say that it wasn't a little disappointing, but after Dr. Petersen explain why the numbers have to be better for the transplants to work, I think we all understood a little better and I'm determined to do what it takes to give us the best chance for a successful transplant scenario.

We're hanging out in Salt Lake tomorrow, planning on having dinner with the Pronks tomorrow night and starting for home on Saturday morning, depends on how soon we make it out of Salt Lake on Saturday whether we make it all the way to Vegas or wait until Sunday to finish the trip.

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