The trip to Reno went very well. My stamina held up better than I thought that it would and it was good to see some people that we don't get to see more that 2 or 3 times each year. We have a very good surveyor's association in Nevada, but it's hard with the economy and the devastation to our ranks that has happened.
I'm not sure what I picked up, but I woke up Sunday morning with plugged ears which pretty much makes me about 80 percent deaf with my already compromised hearing. It's Monday morning now and I'm staying home today to try to get over it. I did take the Dex Sunday night and slept through the night pretty well.
Round 3 of the Revlimid gets over this Wednesday evening so I'll have to get busy ordering the prescription for Round 4 to begin next week, I'll need to call Christi at Dr. Te's Office to get busy on the order. We are scheduled to go to St. George this week for blood tests on Thursday night and then the Arida bone medicine on Friday, I'll let everyone know how they go.
Thank you all for your thoughts and prayers and patience with me, I will try to be better about reporting things in the future. As I mentioned above, I know we'll have a Round 4 out patient protocol, not sure what will happen after that and the time frame we're looking at for Salt Lake. We'll keep you informed.
Monday, October 18, 2010
10/14/2010 Good Week
I had a very good week mostly. I had mentioned already that I try to take the Dex on Sunday night late usually, this is because it gets in my system and starts the steroid activity Monday morning and usually by Monday night the peak has passed and I get some sleep. Well, this time I forgot on Sunday night and didn't take the Dex until Monday morning, it took a while to activate and then kept me up about half of Monday night so I want to try harder to remember to take them on Sunday night - it just works better that way.
On the up side, I had three full days of work this week on Monday, Tuesday and n Wednesday I was in a meeting until nearly 5:00 pm with no bad effects. It's Thursday and I'm on the way to Reno for the night to attend a couple of surveyor's meetings with the Lahanton (Reno) Chapter surveyors and then a full day meeting with our state surveyor association board meeting on Friday which I'm hoping will go OK with my stamina. I'm the Southern Nevada Chapter President this year and have missed several meetings and activities due to appointments and side effects so it's good that I can make this group of meetings. It's nice in Reno this time of year and it's still too hot in Las Vegas for being the middle of October.
On the up side, I had three full days of work this week on Monday, Tuesday and n Wednesday I was in a meeting until nearly 5:00 pm with no bad effects. It's Thursday and I'm on the way to Reno for the night to attend a couple of surveyor's meetings with the Lahanton (Reno) Chapter surveyors and then a full day meeting with our state surveyor association board meeting on Friday which I'm hoping will go OK with my stamina. I'm the Southern Nevada Chapter President this year and have missed several meetings and activities due to appointments and side effects so it's good that I can make this group of meetings. It's nice in Reno this time of year and it's still too hot in Las Vegas for being the middle of October.
10/6/2010 Just Checking In
It's Wednesday and the Dex is holding me up this week, I'm starting to crash a little, but not too bad. I normally take the Dex late Sunday night and it lasts two full days and sometimes a little into Wednesday to keep me working for nearly 3 full days before crashing and definitely not making it until Thursday afternoon at work. I'm grateful it works as well as it does, I don't think that it why they give it to me, but after all the other side effects I get, I'll take one like this every now and again.
I'm about a week into Round 3 of the Revlimid and other than a fair amount of heartburn and reflux not too much to report on the side effects side on things. I have to be careful what and when I eat in the evening to minimize the effects of the Revlimid.
I'm about a week into Round 3 of the Revlimid and other than a fair amount of heartburn and reflux not too much to report on the side effects side on things. I have to be careful what and when I eat in the evening to minimize the effects of the Revlimid.
10/2/2010 Round 2 Test Results
Well, I have to admit what all of you know. I am a terrible blogger, I don't know why I don't sit down a couple times a week and write two or three sentences but I guess I think there is nothing to tell and something will happen that will make it worth while, don't know if I'll get any better, but I'd like to.
Anyway, we went to Coral Canyon on Thursday evening 9/30 and spent the night, got to see Bruce and Cara and Tyler. I started Round 3 of the Revlimid treatment Thursday night. Friday morning we got up and went to see Dr. Te. The news was good, but of course not as good as we wanted. The one set of numbers that Dr. Petersen from LDS Hospital was looking at was the IGA or IGM (I never can remember). After Round 1 it hadmade a significant drop to 2.9 and they want it to be around 1.0 to be almost normal. Well the number we have after Round 2 is 2.3 which is good, but it didn't drop as much as we'd hoped it would. Dr. Te explained it that the more there is, the easier for the medicine to get more of it, as the number drops, we'll make progress percentage wise, but the numbers won't drop as fast. This probably means that we'll have at least a Round 4 of Revlimid before we can think of going to Salt Lake.
Tomorrow night I'll do another round of Dex and see how it takes me through the week.
Anyway, we went to Coral Canyon on Thursday evening 9/30 and spent the night, got to see Bruce and Cara and Tyler. I started Round 3 of the Revlimid treatment Thursday night. Friday morning we got up and went to see Dr. Te. The news was good, but of course not as good as we wanted. The one set of numbers that Dr. Petersen from LDS Hospital was looking at was the IGA or IGM (I never can remember). After Round 1 it hadmade a significant drop to 2.9 and they want it to be around 1.0 to be almost normal. Well the number we have after Round 2 is 2.3 which is good, but it didn't drop as much as we'd hoped it would. Dr. Te explained it that the more there is, the easier for the medicine to get more of it, as the number drops, we'll make progress percentage wise, but the numbers won't drop as fast. This probably means that we'll have at least a Round 4 of Revlimid before we can think of going to Salt Lake.
Tomorrow night I'll do another round of Dex and see how it takes me through the week.
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