We got out of town a little late on Monday, but still made it to the labs on time so it was no problem. Cara, Bruce and Tyler were at Coral Canyon so we enjoyed spending the evening with them.
Treatment morning went well, except Dr. Te was running late because of a procedure he was doing in his office that morning that made all of us run late to get to the treatment room. He went over most of my labs with me (all the results from Mon. night weren't back yet) and it looks like everything is moving in the right direction still. The Procrit is also helping my Anemia which is good. Anyway, made it through treatment by about 11:30 and then we ran a couple of errands and then I drove us home, I was still feeling really well since the side effects don't really hit until the next day or two and the Dex has me up and running.
As you can tell, I didn't need the alarm clock this morning, got out of bed a while ago and will go get ready for work in a little while. 3rd day of the Dex today, one more to go for this week, so by the weekend I'll start feeling the side effects from treatment and will slow down again. The last 4 or 5 days have been very nice, I've felt just about as normal as I can since this whole thing started. We'll see how today goes and tomorrow we get ready to go up for the next Treatment.
Wednesday, June 30, 2010
Monday, June 28, 2010
6/28/2010 Ready to begin Round 4
I wasn't looking forward to the weekend getting over, it meant getting ready to start Round 4 of the treatments and by the time Sunday came around I was feeling just about as normal as I have for several weeks, but it's Monday now and time to get ready for the next series of treatments. I started another 4 days of the Dex this morning (and I was sleeping so good) then we'll be traveling this afternoon. Last week's rest and recovery really helped me, so hopefully that with the Dex will keep things moving through this round of treatments.
Tonight's blood draw is a big one so they can have all current numbers for everything going into this round. In 2 1/2 weeks we'll be traveling to Salt Lake to meet with the doctors at LDS Hosptital so this blood draw will help them too, or I'll get to do another one before going up.
Tonight's blood draw is a big one so they can have all current numbers for everything going into this round. In 2 1/2 weeks we'll be traveling to Salt Lake to meet with the doctors at LDS Hosptital so this blood draw will help them too, or I'll get to do another one before going up.
6/23/2010 Was it a week off? (late)
I'm writing this late, I just never got around to adding this information last week.
We made a quick trip to St. George to pick up the Hyundai from the dealer, so while we were there, I went to Dr. Te's office and got the second shot of Procrit, which is suppose to help my Anemia problems without giving me other peoples antibodies. Last week when they gave it to me I ended up with some pretty nasty side effects, but this time I took precautions and took a big dose of tylenol before getting the shot, so the side effects were very small - almost non-existent. It was a very quick trip. We took Addie with us, she was a very good traveler.
Then we went home and enjoyed a quiet weekend.
We made a quick trip to St. George to pick up the Hyundai from the dealer, so while we were there, I went to Dr. Te's office and got the second shot of Procrit, which is suppose to help my Anemia problems without giving me other peoples antibodies. Last week when they gave it to me I ended up with some pretty nasty side effects, but this time I took precautions and took a big dose of tylenol before getting the shot, so the side effects were very small - almost non-existent. It was a very quick trip. We took Addie with us, she was a very good traveler.
Then we went home and enjoyed a quiet weekend.
Monday, June 21, 2010
6/21/2010 More Interesting Days
Sometime Saturday, I think it changed from bone pain associated with the medicine - to kidney pain as the heat and maybe not enough water caused some real discomfort in my lower left back. I have a new found respect for those that suffer with kidney pain, I didn't recognize what was happening, so I kept medicating myself for bone pain side effects, but I think sometime around 3 or 4 am Sunday morning I recognized that it was a different pain I was suffering with. So after Patty did some reading Sunday morning and we recognized that it was probably a liquid problem, I set myself a challenge to drink my kidneys back to normal.
It's Monday evening now and I think I've drank enough water to float a ship, but the kidneys feel pretty good and I don't have the pain I had over the weekend. My insides are still recovering, but things are looking up.
It's Monday evening now and I think I've drank enough water to float a ship, but the kidneys feel pretty good and I don't have the pain I had over the weekend. My insides are still recovering, but things are looking up.
Saturday, June 19, 2010
6/19/2010 An Interesting couple of Days
We were a little late getting out of Vegas on Thursday evening, which normally wouldn't be a problem, the lab stays open until 9:00 pm. Well, we left town and headed up, somewhere around the Moapa Tribal truck stop the lights on the dashboard started coming on starting with the battery light. I figured that OK, the car is 3 1/2 years old, it's summer, we need a battery, so we started calling and found that the AutoZone in Mesquite had what we needed, so we limped into Mesquite and with the help of a nice kid at the store got the battery, got it changed and got on our way to make it to the labs with plenty of time to spare.
We thought that was the end of the problems, Bruce had a charger at the shop which he brought over to the house and we charged the new battery all night to make sure everything would be good. Well, that was the theory anyway. We got up Friday morning, Patty had to work at Smith's so I hauled her over there to work and went to my treatment, I was starting to get the idea that something else was happening because the batter light came back on, so we called Hyundai and got an appointment to have it looked at after lunch.
Treatment itself went pretty well, but I guess that I'm getting more anemic so they gave me some new medicine to boost me up rather than thinking about a transfusion. It all went well, but it has a side effect - it gets into the bones and has some pain associated with the after effects. They gave me medicine, but I should have taken it sooner, made it through, but wasn't much company for Patty for the rest of the day.
So, getting back to the car, we got some lunch and then went to Hyundai to have them look at it. They got it in pretty quick, and they found that the Alternator had burnt out - which happens so rarely, they didn't have a new one in stock, so they rented us a car to bring back to Vegas and the new part won't be in until at least next Tuesday, which also means that our week off, won't really be a total week off when we have to go up to get the Hyundai back. That will help the treatments, because they wanted the shots to be done once a week for 4 weeks - so this will work out.
We thought that was the end of the problems, Bruce had a charger at the shop which he brought over to the house and we charged the new battery all night to make sure everything would be good. Well, that was the theory anyway. We got up Friday morning, Patty had to work at Smith's so I hauled her over there to work and went to my treatment, I was starting to get the idea that something else was happening because the batter light came back on, so we called Hyundai and got an appointment to have it looked at after lunch.
Treatment itself went pretty well, but I guess that I'm getting more anemic so they gave me some new medicine to boost me up rather than thinking about a transfusion. It all went well, but it has a side effect - it gets into the bones and has some pain associated with the after effects. They gave me medicine, but I should have taken it sooner, made it through, but wasn't much company for Patty for the rest of the day.
So, getting back to the car, we got some lunch and then went to Hyundai to have them look at it. They got it in pretty quick, and they found that the Alternator had burnt out - which happens so rarely, they didn't have a new one in stock, so they rented us a car to bring back to Vegas and the new part won't be in until at least next Tuesday, which also means that our week off, won't really be a total week off when we have to go up to get the Hyundai back. That will help the treatments, because they wanted the shots to be done once a week for 4 weeks - so this will work out.
Wednesday, June 16, 2010
6/16/2010 Day after treatment
Treatment went well yesterday, got in there, got hooked up and was out the door in good time, then after a couple of errands, Patty left me at the Coral Canyon house and went to lunch with some of her friends from St. George, it was good for her to do that. When she got back we loaded up and then headed over to say Hi to Bill and Ruthann (Patty's brother and sister-in-law). They are getting ready to take a motorcycle ride back east for about 3 or more weeks. Then we hit the road and came back to Vegas, we got back around 4:15 and decided to go pick up Addie right away instead of coming home and then going back out for her. Matt came home while we were over there.
So, you might ask why am I blogging so early again? I'm not sure, but I guess I'll blame part of it on the Dex in my system, and part of it on a knot, or something in the back of my right thigh that wouldn't go away this morning about 4:30, so once again, I get to watch the first rays of light come over Sunrise Mountain this morning and turn off the alarm so Patty can get a few minutes extra sleep. I don't know what this knot, or charlie horse in my leg is, but I hope it goes away soon as it is very distracting. Well, not too much else going on with me, just waiting a few minutes before getting ready to go to work and then we'll see what the day brings us.
So, you might ask why am I blogging so early again? I'm not sure, but I guess I'll blame part of it on the Dex in my system, and part of it on a knot, or something in the back of my right thigh that wouldn't go away this morning about 4:30, so once again, I get to watch the first rays of light come over Sunrise Mountain this morning and turn off the alarm so Patty can get a few minutes extra sleep. I don't know what this knot, or charlie horse in my leg is, but I hope it goes away soon as it is very distracting. Well, not too much else going on with me, just waiting a few minutes before getting ready to go to work and then we'll see what the day brings us.
Tuesday, June 15, 2010
6/15/2010 Treatment Day 3, Round 3
Don't know if it's the Dex, or a warm bedroom, or reflux, or a little of all, but I am up early again, I miss hearing the alarm. We are in Coral Canyon, Bruce, Cara and Tyler are here with us tonight after Cara made us some great Pork Burritos last night - that could account for the reflux as late and as much as I ate. The sun is just coming up here and people will be stirring around soon, but it's nice and peaceful right now, I pay for it later, but I really do enjoy this time of day.
We went over to Matt's house Saturday afternoon, Amanda helped him finish painting the entire downstairs of his home, it looked really good. They have started upstairs, but everyone agreed the blue-gray on the stairs is looking a lot better for a while.
We had a good trip up last night, we took Addie over to Amanda's to spend the night while we came up. I think she's a little confused as to where she actually lives, but she's doing quite well considering what we ask her to put up with and she really enjoys her time with Maggie and Zoey. There is getting to be a lot more traffic on the road heading north on most nights and last night was no exception, don't know where everyone is going, it does thin out a little after Moapa and then again after Mesquite, but still more than there use to be heading into St. George. They have begun work on the new off ramp and bridge that will connect directly to Dixie Drive about a half mile south of the Bluff Street exit, so everyone coming through St. George will need to keep that in mind for the next year or so while they build it.
So, treatment today, another short hour one and I'm back on the Dex for 4 days so my energy levels will be up for this week - countered by reduced sleep. We'll head back to Vegas later today, and I'll be back at work tomorrow and Thursday to get ready to do it all over again. Thursday will be the end of Round 3 treatments, it's kind of weird, but it's one of those things where it seems like we just started this a week or two ago, but it seems like it's been going for a really long time, both are probably true since my quick care issues started clear back in February but the treatments only started at the end of April. Hope every one's summer is going very well.
We went over to Matt's house Saturday afternoon, Amanda helped him finish painting the entire downstairs of his home, it looked really good. They have started upstairs, but everyone agreed the blue-gray on the stairs is looking a lot better for a while.
We had a good trip up last night, we took Addie over to Amanda's to spend the night while we came up. I think she's a little confused as to where she actually lives, but she's doing quite well considering what we ask her to put up with and she really enjoys her time with Maggie and Zoey. There is getting to be a lot more traffic on the road heading north on most nights and last night was no exception, don't know where everyone is going, it does thin out a little after Moapa and then again after Mesquite, but still more than there use to be heading into St. George. They have begun work on the new off ramp and bridge that will connect directly to Dixie Drive about a half mile south of the Bluff Street exit, so everyone coming through St. George will need to keep that in mind for the next year or so while they build it.
So, treatment today, another short hour one and I'm back on the Dex for 4 days so my energy levels will be up for this week - countered by reduced sleep. We'll head back to Vegas later today, and I'll be back at work tomorrow and Thursday to get ready to do it all over again. Thursday will be the end of Round 3 treatments, it's kind of weird, but it's one of those things where it seems like we just started this a week or two ago, but it seems like it's been going for a really long time, both are probably true since my quick care issues started clear back in February but the treatments only started at the end of April. Hope every one's summer is going very well.
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